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sicklecellanemianews
5 天
Lessons learned from my most recent sickle cell pain crisis
When a sickle cell pain crisis landed her in the hospital, columnist Mary Shaniqua soon identified the cause: getting two vaccines at once.
sicklecellanemianews
6 天
SCD patients free of VOEs after treatment with gene-editing therapy
Nearly all the patients with severe SCD treated with the gene-editing therapy reni-cel remained free of VOEs for up to two ...
sicklecellanemianews
7 天
Etavopivat may reduce VOC rate, increase hemoglobin in SCD
Data from a Phase 2/3 trial shows etavopivat may reduce the incidence of vaso-occlusive crises and raise levels of hemoglobin ...
sicklecellanemianews
11 天
Shaniqua’s Sickle Chronicles
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to ...
sicklecellanemianews
12 天
Why it’s important to celebrate good care when we receive it
Sickle cell patients often face challenges when implementing their care plans. Columnist Mary Shaniqua describes what good ...
sicklecellanemianews
13 天
Most patients free of vaso-occlusive crises for years after Casgevy dose
Most sickle cell disease patients who received the gene-editing therapy Casgevy have been free from vaso-occlusive crises for ...
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