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hemophilianewstoday
13 小时
A difficult first semester of college taught my son valuable lessons
Columnist Joe MacDonald's son struggled to balance school and hemophilia during his first semester of college. Now, he's better prepared.
hemophilianewstoday
2 天
Sangamo to regain rights to hemophilia A gene therapy
Sangamo will regain full rights to giroctocogene fitelparvovec, a gene therapy candidate for hemophilia A, after Pfizer ended ...
hemophilianewstoday
2 天
Exploring the connection between hemophilia A and low bone density
Columnist G Shellye Horowitz wasn't surprised to learn she had osteopenia, as her bleeding disorder increases her risk of low ...
hemophilianewstoday
6 天
FDA approves Alhemo for hemophilia A or B with inhibitors
The U.S. FDA has approved Alhemo, given as once-daily injections, to help prevent bleeds in patients with hemophilia A or B ...
hemophilianewstoday
1 天
We must avoid being complacent with hemophilia treatment
MacDonald worries about her adult son being complacent when it comes to administering his hemophilia medication.
hemophilianewstoday
9 天
When confronting life’s problems, hemophilia included, I never give up
Home renovations remind columnist G Shellye Horowitz of her efforts to be heard by doctors. In healthcare and in life, she ...
hemophilianewstoday
3 天
Why my husband prefers manual wheelchairs instead of electric ones
Columnist Alliah Czarielle says a conversation she had with her husband about manual wheelchairs surprised her.
hemophilianewstoday
6 天
Top 10 hemophilia stories of 2024
Hemophilia News Today compiled a summary of the 10 most read hemophilia stories of 2024, with links to the individual items.
hemophilianewstoday
10 天
How ADHD benefits me as a caregiver to my husband
While she's still learning to navigate life with ADHD, columnist Alliah Czarielle has found that the condition benefits her as a caregiver.
hemophilianewstoday
14 天
Remembering the time all seemed lost and we found a sprig of hope
Columnist Joe MacDonald remembers the Christmas spent with his family in the hospital as his youngest son endured a bleeding episode.
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