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sicklecellanemianews
12 天
Why it’s important to celebrate good care when we receive it
Sickle cell patients often face challenges when implementing their care plans. Columnist Mary Shaniqua describes what good ...
sicklecellanemianews
6 天
SCD patients free of VOEs after treatment with gene-editing therapy
Nearly all the patients with severe SCD treated with the gene-editing therapy reni-cel remained free of VOEs for up to two ...
sicklecellanemianews
7 天
Etavopivat may reduce VOC rate, increase hemoglobin in SCD
Data from a Phase 2/3 trial shows etavopivat may reduce the incidence of vaso-occlusive crises and raise levels of hemoglobin ...
sicklecellanemianews
13 天
Most patients free of vaso-occlusive crises for years after Casgevy dose
Most sickle cell disease patients who received the gene-editing therapy Casgevy have been free from vaso-occlusive crises for ...
sicklecellanemianews
5 天
Lessons learned from my most recent sickle cell pain crisis
When a sickle cell pain crisis landed her in the hospital, columnist Mary Shaniqua soon identified the cause: getting two vaccines at once.
sicklecellanemianews
14 天
The difficult reality of dealing with invisible sickle cell complications
Sickle cell disease can manifest as both a visible and invisible illness, depending on the individual and their unique ...
sicklecellanemianews
15 天
Most SCD patients given Lyfgenia in trials stay free of VOEs: New data
The majority of SCD patients given Lyfgenia in clinical trials remained free of vaso-occlusive events (VOEs) following ...
sicklecellanemianews
20 天
Kanglin raises $20M to advance sickle cell gene therapy KL003
Kanglin Biotechnology has raised $20 million in financing to advance the development of KL003, an experimental gene therapy ...
sicklecellanemianews
11 天
Shaniqua’s Sickle Chronicles
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to ...
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