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hemophilianewstoday
3 小时
We must avoid being complacent with hemophilia treatment
MacDonald worries about her adult son being complacent when it comes to administering his hemophilia medication.
hemophilianewstoday
1 天
Sangamo to regain rights to hemophilia A gene therapy
Sangamo will regain full rights to giroctocogene fitelparvovec, a gene therapy candidate for hemophilia A, after Pfizer ended ...
hemophilianewstoday
1 天
Exploring the connection between hemophilia A and low bone density
Columnist G Shellye Horowitz wasn't surprised to learn she had osteopenia, as her bleeding disorder increases her risk of low ...
hemophilianewstoday
5 天
FDA approves Alhemo for hemophilia A or B with inhibitors
The U.S. FDA has approved Alhemo, given as once-daily injections, to help prevent bleeds in patients with hemophilia A or B ...
hemophilianewstoday
2 天
Why my husband prefers manual wheelchairs instead of electric ones
Columnist Alliah Czarielle says a conversation she had with her husband about manual wheelchairs surprised her.
hemophilianewstoday
8 天
When confronting life’s problems, hemophilia included, I never give up
Home renovations remind columnist G Shellye Horowitz of her efforts to be heard by doctors. In healthcare and in life, she ...
hemophilianewstoday
5 天
Top 10 hemophilia stories of 2024
Hemophilia News Today compiled a summary of the 10 most read hemophilia stories of 2024, with links to the individual items.
hemophilianewstoday
9 天
How ADHD benefits me as a caregiver to my husband
While she's still learning to navigate life with ADHD, columnist Alliah Czarielle has found that the condition benefits her as a caregiver.
hemophilianewstoday
13 天
Remembering the time all seemed lost and we found a sprig of hope
Columnist Joe MacDonald remembers the Christmas spent with his family in the hospital as his youngest son endured a bleeding episode.
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