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Muscular Dystrophy News
3 天
How I measure my quality of life as someone with LGMD
How can you measure a person's quality of life? For columnist Patrick Moeschen, the key is deciding for yourself what a good ...
Muscular Dystrophy News
9 天
Sevasemten lowers markers of muscle damage in BMD: Trial
Sevasemten significantly reduced two markers of muscle damage in treated Becker muscular dystrophy patients in Phase 2 CANYON ...
Muscular Dystrophy News
8 天
There’s never a dull moment living with Duchenne muscular dystrophy
Columnist Shalom Lim appreciates how Duchenne never offers a dull moment as he prepares for the challenges and adventures in ...
Muscular Dystrophy News
15 天
I’ll continue to do what I love, despite the FSHD ‘hangovers’
FSHD exacts a toll on columnist Robin Stemple when he is out and about. He calls these symptom flares "FSHD hangovers." ...
Muscular Dystrophy News
6 天
How I’ve learned to embrace the highs and lows of caregiving
Learning that three of her sons had DMD challenged columnist Betty Vertin, but now she embraces the highs and lows of the experience.
Muscular Dystrophy News
14 天
Agamree recommended for NHS use in UK, approved in China
Agamree (vamorolone) was recommended for use in the NHS in England, Wales, and Northern Ireland for treating Duchenne ...
Muscular Dystrophy News
8 天
Over 20 new MDA grants will fund research into muscle diseases
The Muscular Dystrophy Association (MDA) has awarded nearly two dozen new grants to fund research into various forms of muscular dystrophy, including Duchenne and limb-girdle, as well as related ...
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